Helpful Links
The following web sites have been selected because they offer extensive information in full-text or specific resources for the online visitor. Use what you learn here to enhance your decision making in partnership with your medical team.
[Clicking headlines below takes you to list of corresponding web links]
1. General Health Resources
2. Cancer
3. Blood and Marrow Transplantation
4. Breast Cancer
5. Children's Cancer
6. Colon Cancer
7. Complementary & Alternative Medicine
8. Leukemia, Lymphomas, Myeloma
9. Lung Cancer
10. Prostate Cancer
11. Cancer Genetics
12. Melanoma & Skin Cancers
13. Ovarian Cancer
14. Legislative & Cancer Health Policy
Healthfinder Search
A consumer health education database: links to 96 journals, a medical dictionary, research databases and organizations, Spanish language resources, consumer level text.
The Internet Drug Index
Drug information for professionals. Patient information in easy-to-read summaries available on traditional pharmaceuticals and alternative medicines.
Martindale's Health Science Guide: "Virtual" Pharmacy Center
Drug-related databases and medical dictionaries and glossaries in six different languages. Many links to pharmacy-related and online journal sites. International services guide.
Medical and Scientific News Resources
A multi-link page to wire, electronic, television, and alerting news services.
New York Online Access to Health [NOAH]
Full-text health information in English and Spanish. Health topics and resource link to hospitals, hospice, HMOs, patient rights, support groups in New York.
American Cancer Society
National and regional programs in research, prevention, detection, patient and survivor services. Glossary of cancer terms. Links to organizations for specific cancers, government agencies, pharmaceutical companies, journals, and hospital directories at "web resources".
American Institute for Cancer Research
Emphasis on diet, nutrition, and cancer prevention. Access recipes and diet plans for prevention and for those with cancer. Reports on research, text of newsletter columns, and links to other nutrition sites.
American Pain Foundation
An information resource and patient advocacy organization serving people with pain. Provides practical information for cancer patients on types of pain, managing pain, choosing the right medicine, side effects, non-drug treatments and more. Also offers answers to common questions and concerns, as well as guidelines for evaluating and communicating your pain to doctors and nurses.
Association of Cancer Online Resources
Archived information from oncology-related mailing lists and electronic support groups. Created for communication among and between healthcare professionals, research scientists, and cancer patients and caregivers.
American Society of Clinical Oncology
ASCO online brings peer-reviewed cancer information to the public. Attend "Virtual Meeting" of 1999 Conference lectures and exhibits. In "People Living With Cancer" access to full text of patient guides for breast and lung cancers and updated patient information news, access to professional publications..
Centerwatch
Lists clinical trials including a summary of the research and contact information.
Leukemia Society of America
Full text on leukemia, lymphoma, Hodgkin's disease, and myeloma. Updates on legislative issues, patient services (financial, support groups, back-to-school), and local chapter search.
National Cancer Institute
Links to NCI cancer trials, patient, research, and professional information services. Specific cancer information summaries
National Coalition for Cancer Survivorship
A site for cancer survivors and their caretakers. All information provided in English and Spanish. Order form for free Cancer Survival Toolbox audio program, information and contacts to survivorship programs including Minority Cancer Survivorship Programs, linkage to cancer resources, and online store offering books and pamphlets on cancer survivorship.
National Comprehensive Cancer Network
A not-for-profit alliance of 21 of the world's leading cancer centers, is dedicated to improving the quality and effectiveness of care provided to patients with cancer.
3. Blood and Marrow Transplatation
Blood and Marrow Transplant Newsletter
Donor and recipient resources, newsletter articles in full-text, support services, patient-survivor support system, and "Help with Insurance Difficulties" direct referral service.
Y-ME National Breast Cancer Organization
Peer support programs and information text enhanced by 24-hour hotline. Information, links, and services in Spanish available. Advocacy initiatives in breast health policy and research.
5. Children's Cancer Resources
National Childhood Cancer Foundation
Site gives facts on cancer in children and latest information on research, current events, advocacy, and stories about patients and their families. Links to support activities for children and teens at "Kids Konnection."
Never-Ending Squirrel Tale
Serves parents of children with cancer. Practical tips, individual stories, glossary, advisory and news articles, specialized links.
Shoulders
Cartoon characters lead children through the emotional upheavals of their severe illness or of others in their families. A resource for parental/child interaction. Sponsored by Johns Hopkins Health Information site "Intelihealth."
Colon Cancer Information Center, Medicine OnLine
Colon Cancer Alliance
The oldest and largest national patient advocacy organization dedicated to ending the suffering caused by colorectal cancer.
7. Complementary & Alternative Medicine
National Center for Complementary and Alternative Medicine (NCCAM)
The National Center for Complementary and Alternative Medicine (NCCAM), part of the National Institutes of Health, conducts and supports basic and applied research and training and disseminates information on complementary and alternative medicine to practitioners and the public.
8. Leukemia, Lymphomas, Myeloma Resources
Cure for Lymphoma Foundation
Information on patient programs and services: family forums, teleconferences, support groups and networking groups, patient aid.
International Myeloma Foundation
Patient handbook excerpts (also in Spanish), online support groups, and support group meetings contacts (local site: Tarrytown for tri-state area).
Leukemia Society of America
Full text on leukemia, lymphoma, Hodgkin's disease, and myeloma. Updates on legislative issues, patient services (financial, support groups, back-to-school), and local chapter search.
Lymphoma Research Foundation of America, Inc.
Patient education materials on-line, research updates, contacts for support networks, message boards for on-line interaction, list of recommended readings with on-line ordering.
Alliance for Lung Cancer Advocacy, Support, and Education
Lung Cancer Information Center, Medicine OnLine
Prostate Cancer Patient Information Center
An educational service of Hoechst Marion Roussel Pharmaceutical USA. Offers free video program, prostate cancer survivor profiles form "ABC's of Prostate Cancer." section on the women partners of patients, and links to personal support groups such as in "Affirming the Darkness," "The Circle," and "Women's Suffrage for Prostate Cancer Awareness." Also, news links and screening guidelines.
Prostate Cancer Research and Education Foundation
Site developed by physicians to disseminate information and understanding of the cancer, treatment choices, and support to patients. Sections on "making treatment choices", forums among professionals, multigraph service to plot PSA histories, keyword searches, information links to news, research and trials, and financial assistance.
Mid-Atlantic Cancer Genetics Network
The MACGN is funded by the National Cancer Institute. This site provided research updates, full-text information for the comsumer on cancer genetics with special focus on breast/ovarian, colorectal, and prostate cancers, and an on-line referral service in the Mid-Atlantic region.
American Academy of Dermatology
Skin cancer fact sheets on melanomas and skin cancers, instructions for patient self-examination, skin cancer risk profile, pamphlets, and press releases.
CDC National Skin Cancer Prevention Education Program
Information on ultraviolet rays, skin cancer protection, prevention guidelines; order form for skin cancer publications.
National Ovarian Cancer Coalition
Wide variety of full-text on ovarian cancer, working with the medical team, personal and family issues, treatments, "mind2body."
14. Legislative and Cancer Health Policy
Food and Drug Administration
Home page for FDA. Search specific topics to find federal regulation and consumer publications on cancer issues: toxicology reports, new medical devices and drugs, children and tobacco, field operations, "freedom of information" guidelines.
New York State Dept. of Health Cancer Information for Consumers
Cancer services provided by the NYS Dept. Of Health. Links to regional mammography facilities and mobile units, cancer registry, and the Long Island Breast Cancer Study.
State Cancer Legislative Database Program
Database of cancer-related legislation organized by state. Resource for research and analysis of cancer-related health policy. Cancer control science and public health are monitored.
