1.
General Health Resources
Healthfinder
Search
A consumer
health education database: links
to 96 journals, a medical dictionary,
research databases and organizations,
Spanish language resources, consumer
level text.
The
Internet Drug Index
Drug information for professionals.
Patient information in easy-to-read summaries
available on traditional pharmaceuticals and alternative
medicines.
Martindale's
Health Science Guide: "Virtual" Pharmacy Center
Drug-related databases and
medical dictionaries and glossaries in six different
languages. Many links to pharmacy-related and
online journal sites. International services guide.
Medical
and Scientific News Resources
A multi-link page to
wire, electronic, television, and alerting news
services. New
York Online Access to Health [NOAH]
Full-text health information
in English and Spanish. Health topics and resource
link to hospitals, hospice, HMOs, patient rights,
support groups in New York.
WebDoctor
Internet navigator for physicians. Index
of peer-reviewed Internet medical resources and direct text
on disease information categorized by specialty or disease,
including cancers.
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2. Cancer
Resources
American
Cancer Society
National and regional
programs in research, prevention, detection, patient
and
survivor services. Glossary of cancer terms. Links
to organizations
for specific cancers, government agencies, pharmaceutical
companies, journals, and hospital directories at "web
resources".
American
Institute for Cancer Research
Emphasis on diet, nutrition,
and cancer prevention. Access recipes and diet
plans for prevention and for those with cancer.
Reports on research, text of newsletter columns,
and links to other nutrition sites.
American
Pain Foundation
An information resource
and patient advocacy organization serving people
with pain. Provides practical information for
cancer patients on types of pain, managing pain,
choosing
the right medicine, side effects, non-drug treatments
and more. Also offers answers to common questions
and concerns, as well as guidelines for evaluating
and communicating your pain to doctors and nurses.
Association
of Cancer Online Resources
Archived information from
oncology-related mailing lists and electronic
support groups. Created for communication among
and between
healthcare professionals, research scientists,
and cancer patients and caregivers.
American
Society of Clinical Oncology
ASCO online brings peer-reviewed
cancer information to the public. Attend "Virtual
Meeting" of 1999 Conference lectures and exhibits.
In "People Living With Cancer" access
to full text of patient guides for breast and
lung cancers and updated patient information
news, access
to professional publications..
Cancer
Care, Inc.
Comprehensive services for
professionals, patients, and general public.
Texts online, free publications, register for free
teleconferences
or hear past conferences on your computer.
Centerwatch
Lists clinical trials including a summary
of the research and contact information.
Leukemia
Society of America
Full text on leukemia, lymphoma,
Hodgkin's disease, and myeloma. Updates on legislative
issues, patient services (financial, support
groups, back-to-school), and local chapter search.
National
Cancer Institute
Links to NCI cancer trials,
patient, research, and professional information
services. Specific
cancer information summaries
National
Coalition for Cancer Survivorship
A site for cancer survivors
and their caretakers. All information provided
in English and Spanish. Order form for free Cancer
Survival Toolbox audio program, information and
contacts to survivorship programs including Minority
Cancer Survivorship Programs, linkage to cancer
resources, and online store offering books and
pamphlets on cancer survivorship.
Oncolink
University of Pennsylvania's comprehensive
online resource for patients, professionals, and general
public. Text on individual cancers and related issues such
as chemotherapy
education materials for patients, supportive care, and financial
issues for patients. Descriptions of oncology-related mailing
lists and newsgroups, cancer trial information, and links
to other online reference sources.
Oncology
Smart Search
Janssen Pharmaceutica's
online, user-friendly direct search in MEDLINE
oncology literature and MEDSCAPE oncology literature
in full-text, news, and patient information categories.
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3. Blood
and Marrow Transplatation
Blood
and Marrow Transplant Newsletter
Donor
and recipient resources, newsletter
articles in full-text, support
services, patient-survivor support
system, and "Help with Insurance
Difficulties" direct referral
service.
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4. Breast
Cancer Resources
Interactive
Site on Breast Cancer Awareness
Developed by the Dept.
of Defense for its Breast Cancer Initiative, an on-line
patient decision support system using the text
of "Breast
Health...Your Decision" and demonstration
videos on self-breast exams, mammography, treatments,
and
reconstruction to view or save to disc. Audio recordings
by women, information about resources, support
groups, breast forms, and clothing. Teaching aids
for health
care providers. Y-ME
National Breast Cancer Organization
Peer support programs and
information text enhanced by 24-hour hotline.
Information, links, and services in Spanish available.
Advocacy
initiatives in breast health policy and research.
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5. Children's
Cancer Resources
National
Childhood Cancer Foundation
Site gives
facts on cancer in children and
latest information on research, current
events, advocacy, and stories about
patients and their families. Links
to support activities for children
and teens at "Kids Konnection."
Never-Ending
Squirrel Tale
Serves parents of children
with cancer. Practical tips, individual stories,
glossary, advisory and news articles, specialized
links.
Shoulders
Cartoon characters lead children
through the emotional upheavals of their severe illness or
of others
in their families. A resource for parental/child interaction.
Sponsored by Johns Hopkins Health Information site "Intelihealth."
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6. Colon
Cancer Resources
Colon
Cancer Information Center, Medicine OnLine
7. Complementary & Alternative
Medicine
National
Center for Complementary and Alternative Medicine
(NCCAM)
The National
Center for Complementary and Alternative
Medicine (NCCAM), part of the National
Institutes of Health, conducts
and supports basic and applied research
and training and disseminates information
on complementary and alternative
medicine to practitioners and the
public.
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8. Leukemia, Lymphomas,
Myeloma Resources
Cure
for Lymphoma Foundation
Information
on patient programs and services:
family forums, teleconferences,
support groups and networking groups,
patient
aid.
International
Myeloma Foundation
Patient handbook excerpts
(also in Spanish), online support groups, and
support group meetings contacts (local site: Tarrytown
for tri-state area).
Leukemia
Society of America
Full text on leukemia, lymphoma,
Hodgkin's disease, and myeloma. Updates on legislative
issues, patient services (financial, support
groups, back-to-school), and local chapter search.
Lymphoma
Research Foundation of America, Inc.
Patient education materials
on-line, research updates, contacts for support
networks, message boards for on-line interaction,
list of recommended readings with on-line ordering.
Zalmen
A. Arlin Cancer Institute Leukemia Service
Patient information and
updates on research studies and cancer trials
locally and nationwide.
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9. Lung
Cancer Resources
Alliance
for Lung Cancer Advocacy, Support, and Education
Lung
Cancer Information Center, Medicine OnLine
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10. Prostate
Cancer
Prostate
Cancer Patient Information Center
An educational service
of Hoechst Marion Roussel Pharmaceutical USA. Offers
free video program, prostate cancer survivor profiles
form "ABC's of Prostate Cancer." section
on the women partners of patients, and links to personal
support groups such as in "Affirming the Darkness," "The
Circle," and "Women's Suffrage for Prostate
Cancer Awareness." Also, news links and screening
guidelines.
Prostate
Cancer Program, University of Michigan
Clearly presented sections
on treatment options, educational resources,
prostate cancer genetics project, staging information,
and
full-text of journal articles.
Prostate
Cancer Research and Education Foundation
Site developed by physicians
to disseminate information and understanding
of the cancer, treatment choices, and support to
patients.
Sections on "making treatment choices",
forums among professionals, multigraph service
to plot PSA histories, keyword searches, information
links to news, research and trials, and financial
assistance.
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11.
Cancer Genetics
Ask
NOAH About: Cancer Genetics
Text on basic genetics and
cancer genetics. Subtopics on cancer genes, gene
testing and counseling, gene therapy, and population
groups at risk. Links to more sources for information.
Mid-Atlantic
Cancer Genetics Network
The MACGN is funded by the
National Cancer Institute. This site provided
research updates, full-text information for the
comsumer
on cancer genetics with special focus on breast/ovarian,
colorectal, and prostate cancers, and an on-line
referral service in the Mid-Atlantic region.
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12. Melanoma
And Skin Cancers
American
Academy of Dermatology
Skin cancer
fact sheets on melanomas and
skin cancers, instructions for
patient
self-examination, skin cancer
risk profile, pamphlets, and press
releases.
CDC
National Skin Cancer Prevention Education Program
Information on ultraviolet
rays, skin cancer protection, prevention guidelines;
order form for skin cancer publications.
13. Ovarian
Cancer Resources
National
Ovarian Cancer Coalition
Wide variety
of full-text on ovarian cancer,
working with the medical team, personal
and
family issues, treatments, "mind2body."
14. Legislative
and Cancer Health Policy
Food
and Drug Administration
Home page
for FDA. Search specific topics
to find federal regulation and consumer
publications on cancer issues:
toxicology
reports, new medical devices and
drugs, children and tobacco, field
operations, "freedom of information" guidelines.
New
York State Dept. of Health Cancer Information for Consumers
Cancer services provided
by the NYS Dept. Of Health. Links to regional
mammography facilities and mobile units, cancer
registry, and
the Long Island Breast Cancer Study.
State Cancer Legislative
Database Program
Database of cancer-related
legislation organized by state. Resource for research
and analysis of cancer-related health policy. Cancer
control science and public health are monitored.
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